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癌症患者的疾痛故事:基于一所肿瘤医院的现象学研究 专著

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涂炯   社会科学文献出版社  2020-05 出版
ISBN:978-7-5201-6526-6

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随着医疗技术的发展,癌症已被归为一种慢性疾病,患癌的经历则是个体长期经历的慢性病历程。本书基于作者过去五年在一所肿瘤医院的田野调查,探究癌症患者的疾痛体验,看癌症的出现给个体带来的影响,以及患者对此的理解与应对。书中展现患者从发现疾病、找寻病因、经历治疗、追寻意义、康复的整个历程。本书希望通过对癌症患者切身体验的细致呈现,不仅能为医学社会学的研究增加新的内容,也能启发更多癌症患者应对疾病,并对改进医疗服务有所助益。
[展开]
  • 文前辅文
  • 序言
  • 第一章 介绍:癌症患者的疾病历程
    1. 一 引言
    2. 二 癌症疾痛体验的社会学研究
    3. 三 研究方法:疾病现象学
    4. 四 田野的进入
    5. 五 本书的结构与安排:疾病轨迹
  • 第二章 疾病的发现、告知与信息协商
    1. 一 疾病告知和患者自主权
    2. 二 家属对病情的告知考虑及隐瞒倾向
    3. 三 患者的意愿:对信息需求的增加
    4. 四 告知的协商、变化及影响
    5. 五 讨论和结语:在“保护”与“伤害”之间
  • 第三章 为什么是我?
    1. 一 介绍:疾病的解释模式
    2. 二 食管癌患者的疾病解释和意义追寻
    3. 三 讨论和总结:理解、合法化与意义追寻
  • 第四章 治疗体验:身体、自我与身份的断裂
    1. 一 疾病中的身体、自我和身份
    2. 二 从正常的身体到病痛的身体
    3. 三 身份和自我的中断及转变
    4. 四 讨论和总结:食管癌患者的身体破坏、身份失序及自我迷失
  • 第五章 归家:从断裂到延续?
    1. 一 出院:新的断裂和冲击
    2. 二 人生进程的延续
    3. 三 讨论和总结:断裂到延续?
  • 第六章 疾病的理解、应对和意义追寻:一位癌症患者的心路历程
    1. 一 疾病的应对和意义追寻
    2. 二 L伯的“康复”之路:在绝望中寻找希望
    3. 三 总结和反思:癌症患者的理解、应对和意义追寻
  • 第七章 总结:理解患者经历的意义及重要性
    1. 一 中国癌症患者的疾病历程
    2. 二 患者疾痛经历对医疗服务提供及社会政策的启示
    3. 三 未完待续的故事和研究伦理的反思
  • 后记 一些延续的思考
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