论文

生命意义的重建:癌症晚期病人家属丧失、哀伤和双向摇摆的复原历程研究

摘要

在肿瘤社会工作的理论背景下,本文关注癌症晚期病人家属的问题。对八位癌症临终病人家属进行深度访谈后发现,这些个体经历了家人从生到死的整个生命历程,他们的个体身份从照顾者、丧亲者转变成复原者。本文探讨了重要的人生转折期,他们如何面对癌症晚期患者的死亡,如何度过哀伤,如何在失去的关系中自我复原;围绕癌症死亡的议题,展现了在人文医学的框架下,个体如何回归正常的生活轨道,建立正常的日常生活,如何开展个人关系的重建和寻找新的生命意义。本研究发现,“整合框架”下的哀伤理论,能更好地解读丧亲者的哀伤经验。哀伤叙事体现了丧亲者与生命意义重建进行抗争的声音,哀伤不等同于无意义,丧亲者会在整个哀伤历程中重新定位,在摇摆的复原历程中为自我生命建构新的意义。

作者

唐咏

参考文献 查看全部 ↓
  • 安东尼·吉登斯(著),赵旭东(译)(1998):《现代性自我认同》,上海:三联出版社。
  • 安民兵、刘俊杰(2007):“浅谈社会工作在临终关怀团队中的角色”,《卫生软科学》,第4期。
  • 常喜平、李正、杨红梅(2009):“癌症诊断告知率的调查分析”,《国际护理学杂志》,第9期。
  • 成彦(2007):“临终关怀工作中的社工介入”,《社会福利》,第6期。
  • 丁焱(2003):“不同人群悲伤的特点和护理对策”,《上海护理》,第3期。
  • 何丽、唐信峰、朱志勇、王建平(2016):“持续性联结及其与丧亲后适应的关系”,《心理科学进展》,第5期。
  • 冯显威(2010):“医学社会学的演变与健康社会学的现状和发展前景”,《医学与社会》,第7期。
  • 韩俊红(2011):“21世纪与医学化社会的来临”,《社会学研究》,第3期。
  • 黄盈盈、鲍雨(2013):“经历乳腺癌:从‘疾病’到‘残缺’的女性身体”,《社会》,第2期。
  • 贾晓明(2005):“从民间祭奠到精神分析——关于丧失后哀伤的过程”,《中国心理卫生杂志》,第8期。
  • 金梅、王维利(2014):“癌症病人心理困扰的研究现状及展望”,《护理研究》,第5期。
  • 刘继同(2006):“构建和谐医患关系与医务社会工作的专业使命”,《中国医院管理》,第3期。
  • 刘继同(2012):“改革开放30年以来中国医务社会工作的历史回顾、现状与前瞻”,《社会工作》,第2期。
  • 刘建鸿、李晓文(2007):“哀伤研究:新的视角与理论整合”,《心理科学进展》,第3期。
  • 罗灵、仲伟爱(2010):“临终关怀与医务社会工作”,《中国民康医学》,第20期。
  • 吕文江(2010):“病患何以能被看作审美对象”,《社会学研究》,第4期。
  • 孙玉倩、孙秉赋、温颖娜(2010):“癌症患者家属对告知患者癌症诊断态度的分析研究”,《中国现代医学杂志》,第11期。
  • 唐咏、魏惠兰(2011):“个案管理模式兴起及其在医务社会工作中的启示——以癌末病患照顾者为例”,《社会工作》,第12期。
  • 唐苏勤、何丽、刘博等(2014):“延长哀伤障碍的概念,流行病学和病理机制”,《心理科学进展》,第7期。
  • 唐信峰、贾晓明、侯力琪(2013):“农村丧亲个体应对策略的定性研究:以江西省上饶县某农村为例”,《中国心理卫生杂志》,第10期。
  • 童尧、周宇彤、杨寅(2012):“癌症病人创伤后成长及影响因素现况调查”,《中国临床心理学杂志》,第1期。
  • 于娟(2011):《此生未完成》,湖南:湖南科技出版社。
  • 王喜辉、李秋屏、张红、聂咏梅、黄翠娟(2009):“医务社会工作者在肿瘤病房工作的方式与体会”,《护理学报》,第1期。
  • Abrams,R.(1974). Not Alone with Cancer:A Guide for Those Who Care,What to Expect,What to Do. Springfield,Ill.:Thomas.
  • Bonanno,G.A. & Kaltman,S.(2001). The Varieties of Grief Experience. Clinical psychology review,21(5).
  • Bonanno,G.A. & Keltner,D.(1997). Facial Expressions of Emotion and the Course of Conjugal Bereavement. Journal of Abnormal Psychology,106(1).
  • Bowlby,J.(1960). Grief and Mourning in Infancy and Early Childhood. Psychoanalytic Study of the Child,15(1).
  • Bowlby,J.(1969). Attachment and Loss:Attachment. V. Basic Books.
  • Braun,V. & Clarke,V.(2006). Using Thematic Analysis in Psychology. Qualitative Research in Psychology,3(2):1.
  • Carr,D.,House,J.S.,Kessler,R.C.,Nesse,R.M.,Sonnega,J. & Wortman,C.(2000). Marital Quality and Psychological Adjustment to Widowhood among Older Adults a Longitudinal Analysis. The Journals of Gerontology Series B:Psychological Sciences and Social Sciences,55(4).
  • Carr,D.,House,J.S.,Wortman,C.,Nesse,R. & Kessler,R.C.(2001). Psychological Adjustment to Sudden and Anticipated Spousal Loss among Older Widowed Persons. The Journals of Gerontology Series B:Psychological Sciences and Social Sciences,56(4).
  • Chan,C.L.,Chow,A.Y.,Ho,S.M.,Tsui,Y.K.,Tin,A.F.,Koo,B.W. & Koo,E.W.(2005). The Experience of Chinese Bereaved Persons:A Preliminary Study of Meaning Making and Continuing Bonds. Death Studies,29(10).
  • Chen,W.D.,Zheng,R.Q.,Baade,P.,Zhang,S.,Zeng,H.,Bray,F.,He,J.(2016). Cancer Statistics in China,2015. Ca A Cancer Journal for Clinicians.
  • Fleishman,S.(2011). Learn to Live through Cancer:What You Need to Know and Do. New York:Demos Health.
  • Freud,S.(2003). Totem and Taboo. Routledge.
  • Harvey,J.H.(2000). Give Sorrow Words:Perspectives on Loss and Trauma. Psychology Press.
  • Holmes,T.H. & Rahe,R.H.(1967). The Social Readjustment Rating Scale. Journal of Psychosomatic Research,11(2).
  • Hooyman,N.R. & Kramer,B.J.(2013). Living through Loss:Interventions across the Life Span. Columbia University Press.
  • Janoff-Bulman,R.,Berg,M. & Harvey,J.H.(1998). Disillusionment and the Creation of Value:From Traumatic Losses to Existential Gains. Perspectives on Loss:A Sourcebook.
  • Klass,D.(1997). The Deceased Child in the Psychic and Social Worlds of Bereaved Parents during the Resolution of Grief. Death Studies,21(2).
  • Klass,D.(1999). The Spiritual Lives of Bereaved Parents. Psychology Press.
  • Klass,D.,Silverman,P.R. & Nickman,S.(2014). Continuing Bonds:New Understandings of Grief. Taylor & Francis.
  • Kübler-Ross,E.(1969). On Death and Dying. New York:The Macmillan Company.
  • Lindemann,E.(1944). Symptomatology and Management of Acute Grief. American Journal of Psychiatry,101(2).
  • Lund,D.A.(1989). Older Bereaved Spouses:Research with Practical Applications. Hemi-sphere Publishing Corp.
  • Lutovich,D.(2002). Nobody’s Child:How Older Women Say Good-bye to Their Mothers. Baywood Publishing Company.
  • Martin,T.L. & Doka,K.J.(1998). Revisiting Masculine Grief. Living with Grief:Who We Are,How We Grieve.
  • Martinson,I.M. & Campos,R.G.(1991). Adolescent Bereavement Long-Term Responses to a Sibling’s Death from Cancer. Journal of Adolescent Research,6(1).
  • Neimeyer,R.A.(2001). Meaning Reconstruction & The Experience of Loss. American Psychological Association.
  • Parkes,C.M.(1972). Berevement:Studies of Grief in Later Life. London:Tavistock.
  • Parkes,C.M.(1997). Bereavement and Mental Health in the Elderly. Reviews in Clinical Gerontology,7(01).
  • Parkes,C.M.,& Prigerson,H.G.(2013). Bereavement:Studies of Grief in Adult Life. Routledge.
  • Parkes,C.M.,Laungani,P. & Young,B.(1997). Death and Bereavement. Lond-on:Routledge.
  • Paul.K.A.(2016). When Breath Becomes Air. Random House.
  • Prigerson,H.G.,Maciejewski,P.K.,Reynolds,C.F.,Bierhals,A.J.,Newsom,J.T.,Fasiczka,A. & Miller,M.(1995). Inventory of Complicated Grief:A Scale to Measure Maladaptive Symptoms of Loss. Psychiatry research,59(1).
  • Prigerson,H.G.,Vanderwerker,L.C. & Maciejewski,P.K.(2008). A Case for Inclusion of Prolonged Grief Disorder in DSM-V. Handbook of Bereavement Research and Practice:Advances in Theory and Intervention. (pp.165-186). Washington,DC,US:American Psychological Association. xiv.
  • Rando,T.A.(1988). Grieving:How to Go On Living When Someone You Love Dies. Jossey-Bass.
  • Rehr,H. & Rosenberg,G.(2006). The Social Work-Medicine Relationship:100 years at Mount Sinai. New York:Haworth Press.
  • Riches,G. & Dawson,P.(2000). An Intimate Loneliness:Supporting Bereaved Parents and Siblings. McGraw-Hill Education(UK).
  • Sanders,C.M.(1989). Grief:The Mourning After:Dealing with Adult Bereavement. 2nd ed. New York:Wiley.
  • Schulz,R. & Beach,S.R.(1999). Caregiving as a Risk Factor for Mortality:The Caregiver Health Effects Study. Jama,282(23).
  • Schwab,R.(1998). A Child’s Death and Divorce:Dispelling the Myth. Death Studies,22(5):445-468.
  • Silverman,P.R. & Klass,D.(1996). Introduction:What’s the Problem?. In D.Klass,P.R.Silverman,and S.Nickman(ed.),Continuing bonds:New understandings of grief(pp.3-27). Washington,D.C.:Taylor & Francis.
  • Stewart,W. & P.,Wild C.(2014). World Cancer Report 2014. Geneva:World Health Organization.
  • Stroebe,M.S.(1994). The Broken Heart Phenomenon:An Examination of the Mortality of Bereavement. Journal of Community & Applied Social Psychology,4(1).
  • Stroebe,M.S.,Hansson,R.O.,Stroebe,W. & Schut,H.(2001). Future Directions for Bereavement Research. In M.S.Stroebe,R.O.Hansson,W.Strobe,and H.Schut(ed.),Handbook of Bereavement Research(pp.741-63). Washington.D.C.:American Psychological Association.
  • Stroebe,M. & Schut,H.(1999). The Dual Process Model of Coping with Bereavement:Rationale and Description. Death Studies,23(3).
  • Stroebe,M.(2010). The Dual Process Model of Coping with Bereavement:A Decade On. OMEGA-Journal of Death and Dying,61(4).
  • Stuart.S.(2015). Every day I fight. Blue Rider Press.
  • Utz,R.L.,Lund,D.A.,Caserta,M.S. & Wright,S.D.(2012). The Benefits of Respite Time-Use A Comparison of Employed and Nonemployed Caregivers. Journal of Applied Gerontology,31(3).
  • Walter,C.A.(2012). The Loss of A Life Partner:Narratives of the Bereaved. Columbia University Press.
  • Wang,S.Y.,Chen,C.H.,Chen,Y.S. & Huang,H.L.(2004). The Attitude Toward Truth Telling of Cancer in Taiwan. Journal of Psychosomatic Research,57(1).
  • Worden,J.W.(2008). Grief Counseling and Grief Therapy:A Handbook for the Mental Health Practitioner. Springer publishing Company.
  • Wortman,C.B. & Silver,R.C.(1989). The Myths of Coping with Loss. Journal of Consulting and Clinical Psychology,57(3).
  • Wortman,C.B.(2001). “The Myths of Coping with Loss Revisited”. In M.S.Stroebe,R.O.Hansson,W.Stroebe,and H.Schut(ed.),Handbook of Bereavement Research:Consequences,Coping and Care(pp.405-29). Washington.D.C.:American Psychological Association.

生命意义的重建:癌症晚期病人家属丧失、哀伤和双向摇摆的复原历程研究

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论文目录

  • 一 研究缘起
  • 二 整合框架:丧失、哀伤和双向摇摆的复原
  • 三 研究方法与访谈样本
  • 四 丧失和哀伤:癌症晚期病人家属的丧亲旅程
    1. (一)宣判癌症晚期:被贴上“死亡”标签
    2. (二)癌症病人病情告知:“说”还是“不说”
    3. (三)临近死亡:亲人离去意味着永远地失去
    4. (四)亲人死亡:否认却不得不接受失去的事实
    5. (五)复杂的哀伤:不同关系的死亡
      1. 1.配偶死亡
      2. 2.成年子女死亡
      3. 3.父母死亡
  • 五 丧亲者双向摇摆的复原过程
    1. (一)生理和心理重创
    2. (二)排斥回归正常的生活轨道
    3. (三)建立正常的日常生活
    4. (四)寻找新的社会支持
    5. (五)生命意义的重构
  • 六 研究发现、讨论和局限
    1. (一)研究发现
    2. (二)讨论
    3. (三)研究局限

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